Cannot believe that it has been so long since I posted. Jane, I am posting just for you, since you made fun of me for waiting a month to post! :)
Anyway, life has been a LITTLE crazy the past month!! Just when I think we are getting into a great routine, something happens. Miss Emmy was hospitalized 3 times in a matter of 2 weeks. This was our scariest little venture to date. She has been doing so well. She started out with a 72 hour admission with fever and no other symptoms. WE did IV antibiotics, fluids, etc. and within 72 hours we were back at home. Not even a week later, we were readmitted with fever. This time her fever was much higher, and her blood work was quite scary! She woke up with a 105.7 temp. I put her in the car and headed to the ER, unfortunately, it was 8 am here in Atlanta and I needed to get from Marietta to Sandy Springs. Not an easy task. On our way to the hospital in traffic, Emmy started having trouble breathing and we had to stop and call 911. After being in the ambulance for 45 minutes, being iced down with ice packs, her fever was still 104.8 upon arriving at the ER. Bless her heart her fever just would not go down. Her initial labs showed extremely elevated CRP and WBC as well as lowered hemoglobin and platelets. So, they immediately got her antibiotics and fluids going, and of course, admitted her. After 4 days of antibiotics, a clean kidney ultrasound, many DR. opinions, we came up with no cause of the bacterial infection, and they sent us home. Two days later we were back! This time I believe they did every test humanly possible on this baby, with no luck as to the source of the infection. They think she may be hiding infection in her bones, that is the most likely place to hide bacterial infections!! Or so I hear. Anyway, during that 3rd admission her hemoglobin dropped very, very low and she had to have a blood transfusion. I now know why they call blood power juice. AWESOME!!! This baby is like a new person. She has energy, and color. I never knew how little color she had until she got some. Amazing. It didn't take long after the blood for all of her blood counts to stabilize, so again we went home. So far so good! I am really thinking this blood transfusion is a miracle worker!!!
She has been out for a little over a week, and all is well! We go to Aflac this Wednesday, with hopes that her counts are still stable and that we will be able to start her on a new medication. We are pretty excited about the new med. The new med is suppose to raise her fetal hemoglobin levels and lower the amount of sickling that her blood does!! This should help keep us out of the hospital!!! Please pray for us as we start this medication. As with all medications it does have risks, but the pros definitely outweigh the cons!! I will keep you posted!!
Mina, Aidan, Michael and Carr are doing fabulous!! They are loving school, and all doing very well!! The boys have started gymnastics again and seem to really love it!! Carr wants to play baseball and asks me on a daily basis when I will let him. He's only 2! I can't believe how much he has grown up this past year. He loves being a big brother, he adores Emmy and it is so cute to see him interact with her. He is constantly talking to her, loving on her, giving her his toys, etc. Super sweet!!
I know fall has begun, because so has Michael's first asthma attack of the season! He had his first bad one this weekend, praying that we can keep better control on his asthma this year!!!
Other than ALL of that, we are GREAT!! The kiddos are happy, and we couldn't ask for more than that! Love that our children get along so well, they are proud of each other and would do anything for one another!! God is good!!!!
Thanks for all the emails, calls and support the past month!! We appreciate it so much! The meals that our sweet friends have provided have been delicious and super helpful!! So thankful that God gave us such wonderful, Godly friends!!!
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