Thursday, April 21, 2011

We are MOVING....

BLOG Sites that is.......Follow us over to.....

WWW.THELOTTOFUS.COM

Make sure to subscribe for updates on postings, pictures and more! Also, leave me a comment or shoot me an email with your blog site, so I can add you to my blogroll. I'm still learning how to work this new site! :) Thanks!

**KEEP IN MIND, THE NEW SITE IS A WORK IN PROGRESS!**

Friday, March 25, 2011

An Outrageous Reality Around the World

Read this blog. Check it out for yourself. It's outrageous to me that a judge gets to determine whether or not a child deserves a loving family or should raised in a mental institution. Children with chronic medical conditions, down syndrome, etc are being locked away like they have no value, and are being deemed un-adoptable, despite the fact that there are loving families that want to adopt them.



My heart aches for this family, for this child. Pray with me that the Lord would move mountains, that the Lord would do a work in Russia, and in other countries on behalf of His children. Pray that He would do a mighty work in the very judge who is trying to keep this child from his loving parents.

Tuesday, March 8, 2011

Call to Action.....

One of my favorite verses is, Proverbs 24:12 and it says, "Once our eyes are opened, we can't pretend we don't know what to do. God, who weighs our hearts and keeps our souls, knows that we know, and holds us responsible to act."

This verse gives me such a sense of responsibility. It gives me an urgency to act. Emory and I believe this verse calls us to action for the orphans. He knows that we know there are 163 million orphans, and He expects us to act, He holds us responsible to act.

The urgency I feel causes my head to spin a little. I am not sure in what capacity He is calling us to act next. We own an adoption company, we have adopted 4 orphans, we are beginning the necessary steps to open a licensed agency sometime this year, but I still feel called to more. To something bigger than Emory and I can wrap our heads around.

I feel like a child with endless ambition. I sometimes forget that Emory and I can't rescue the 163 million orphans alone, although that is what I want to do. I wonder why more people don't want to rescue the orphans, I wonder how people can go about their daily lives and never think of the millions of children that are languishing in foster care, dying of aids and hunger as I type this, how there are orphans living in extreme poverty. I wonder how they can not think about this, when it seems to be all I think about.

Emory and I are often asked if we are done growing our family. That is not our decision. That is the Lord's decision. We stand here, with our "YES" on the table to whatever that means. We will go wherever He leads and seek His will for our lives and our children's lives with reckless abandon. I can guarantee you that our work for the orphans, our heart for the orphans is only getting stronger, and that our mission field is growing. I can promise you that the Lord is stirring in our hearts once again, He is opening our eyes to the growing number of orphans worldwide, He is preparing us for His next calling on our lives. We are excited to see what that is, and where it will take us!!

Pray for us as we wait on the Lord to tell us what is next. Pray for us that our hearts will be prepared for whatever it is He calling us to!

In the meantime, we are praying. Praying fervently for His will, praying for the orphans worldwide, praying for the organizations in place to serve the orphans and the widows, praying that the Lord would bless those organizations in a mighty way, so that they can continue in the plight of the orphans!

PRAY WITH US!

Thursday, March 3, 2011

Little Boys...


Little boys are so much fun! Carson has really been quite the entertainment for me lately. He is such a boy! He is always dirty, he can be filthy 10 minutes after I scrub him clean in the bathtub. He eats like he is a pig in a trough. He is always covered in his food, and loves to play in the dirt. He is ALL BOY!!

Today he walked around the house with his jeans unbuttoned most of the day, shoes on the wrong feet, his hat sideways and he was quite pleased with the fact that he had dressed himself. He loves to play outside, catching bugs, chasing the dogs and collecting rocks! He is all boy. Today, I caught him outside on the trampoline examining the findings in his pocket, his loot. This is what he had in ONE pocket. It was jam packed.

All this in one pocket!

I guess I am lucky it wasn't a lizard, or a snake, seeing as how he found one today in the backyard. Normally, he isn't afraid to put a bug in his pocket along with all his little toys.

I love this boy! He is so sweet with baby Emmy, and sweet Collier. Every morning he says, "mommy, you aww da bestest mommy in da wold." I love to hear him say that! He also asks me EVERY morning if I am going to feed him breakfast. Like I didn't the day before. He is such a little helper, and he has no idea that on Sunday he is turning 3 not 6. He is pretty sure he is the same age as Michael and Aidan.

Love my sweet little Carson. He also knows his full name...he says it in such a sweet way....His full name is Carson Elias Lott...his version is CarsonLiesAlot. He says it just like that! Hilarious!!

Anyway, just wanted to share my sweet boy with you all! I am a lucky momma! I can't believe my sweet baby is 3 on Sunday!!

Lord, Thank you for Carson. Thank you for this precious, precious gift. I cannot imagine my life without this sweet boy, and cannot believe that we have been blessed to have him in our lives for almost 3 years. Lord, I pray that I can raise him up to be a light for you. Lord, draw Carson close to you.
I pray that he will come to know you as his Lord and Savior early in his life. I pray that he will be like David in Psalm 63:1. I pray he will trust YOU as Joshua and Caleb did even when others around him hold a differing view, Numbers 14:6-10 and that he will follow you, God wholeheartedly as these two did in Numbers 32:12.

AMEN.

Wednesday, March 2, 2011

The Starfish Story

Original Story by: Loren Eisley



One day a man was walking along the beach when he noticed

a boy picking something up and gently throwing it into the ocean.

Approaching the boy, he asked, "What are you doing?"

The youth replied, "Throwing starfish back into the ocean.

The surf is up and the tide is going out. If I don't throw them back, they'll die."

"Son," the man said, "don't you realize there are miles and miles of beach and hundreds of starfish?

You can't make a difference!"

After listening politely, the boy bent down, picked up another starfish,

and threw it back into the surf. Then, smiling at the man, he said…"

I made a difference for that one."



Love this story! So many of us get overwhelmed with the numbers, the number of orphans, and we think we can't make a difference. You can make a difference, for that one orphan!! I hope this little story encourages you as much as it did me, we can make a difference, don't let the numbers scare you, if you rescue one orphan, the number would go from 147,000,000 to 146,999,999! Imagine if we all rescued just one orphan!!


Can't imagine my family without the children we adopted! Boy, has God blessed our lives with the "orphans" we rescued!!


James 1:27, "Religion that God our Father accepts as pure and faultless is this: to look after orphans and widows in their distress and to keep oneself from being polluted by the world."

Tuesday, March 1, 2011

Back Home....

Well, we are home...and I must admit, I am a little bummed about that. Not because I love living in the hospital with Emmy, but because she was suppose to have a port put in this morning and it was cancelled, so we were free to go yesterday afternoon!

For those of you who do not know what a port is......it is a device that is placed under her skin on her chest, that gives direct access into a vein...so, you still have to puncture the skin to get into it, but it's already in the vein there are no multiple punctures looking for a good vein, there is no digging in search of the perfect vein, etc. You see Emmy has sickle cell, this is a blood disease.....when she is sick, well, even the majority of the time she isn't....her veins are really bad....as soon as they stick a needle into my child, her veins just collapse. There are very few people that are able to stick Emmy and get an IV in on the first shot....okay, let me change that....ONE person. Our favorite nurse on the IV team is the only person that can get her IV cath in on the first try. This nurse works during daytime, weekday hours only!!!

Anyway, back to the port issue. Her team had decided on Friday that they would put in the port TODAY, Tuesday March 1. Then her team undecided....they decided that she was a great risk of sepsis in her blood if we went the port route. SO, no port. Emory and I don't want to do anything that puts Emmy at risk for sepsis, that would kill her, but we do want to find a new protocol so that Emmy does not have to be subjected to the torture that she has endured for the last 14 months. She is poked at every ER visit on average, 7 times. That is an average.....that tells you that somedays she is poked many, many more than that. THIS IS RIDICULOUS! Can you imagine holding your child down to be poked that many times? It isn't fun, and it is breaking my heart.

Please pray that our team will develop a new protocol for Emmy in their team meeting today, pray that they would receive answers for all the lab tests that they are running, pray that the Lord would give them wisdom as they decide what is wrong with Emmy's brain, pray that the Lord would give me peace as I hold her down through this difficult time on her little body, pray for a miraculous healing for Emmy, pray that the Lord would wrap His arms around her each and every time we are in the hospital, and that HE would numb her sweet little body to the poke of these needles!!

Thanks for being so faithful to pray alongside Emory and I. We know that He hears our prayers, and we are believing that He will provide the answers as we have asked!

Saturday, February 26, 2011

Our Second Home


Well, here we are again, at our second home....Scottish Rite. Emmy is sick AGAIN!! Actually, she isn't sick, she is just running temps of 105 degrees. She has no symptoms, not a one. We have no idea what is going on, but our team of doctors is determined to figure it out. Praise the Lord for that!! We have been here everyday since Tuesday, and admitted on Thursday. She has consistently run fever since Monday afternoon, as the week has progressed her food and liquid intake has slowed and her energy levels have dropped. She is worn out!! Not that I can blame her! Can you? She has been poked in literally every vein in her hands, arms, feet and legs. She has been x-rayed, CT scanned, MRI'd, etc....She is flat tired of this. Me too!! We are ready for answers, unfortunately the current bout of tests they are running are tests that take a while to come back, so we wait. UGH, I hate to wait.

We are meeting with the geneticist, infectious disease and neuro teams today....hopefully, they can at least provide some insight into what they think is the problem. Being that her MRI is so abnormal, there is a small chance that there is damage to the hypothalamus causing her body to be unable to regulate her temps, we will see!

Pray for us as we wait! Pray for Emmy. They will be placing a port in her chest in the very near future, possibly even on Monday if her labs can stabilize. Pray that they do, pray that they can place the port with no complications. Thank you for the prayers!! We appreciate them so much!!! Here are a couple of pics of Miss Emmy!!

Snoozing with Collier
Painting a sun catcher
Meeting Rep. John Lewis
Playing with my new toy!

Wednesday, February 23, 2011

The "E" Family

Last week, we had the privilege of spending time with one of our precious clients. Their family was in Georgia to adopt a baby, but unfortunately, that is not how things turned out! So, while I wish that we had met under better circumstances, I am still thankful for the chance we had to meet them!! They are an incredible family, and we enjoyed every second of their company, as did our kiddos!!! Here is a pic of all of us together at Pappasito's!!


Monday, February 21, 2011

A MUST READ...

I know many people who read this blog are not adoptive parents. This post is too the many people that ask adoptive families very inappropriate questions, especially in front of our children. I think his post sums up what most of us (adoptive parents) think about those questions.

I thought I would share this blog post written by Dan Pearce. He writes the blog, "Single Dad Laughing". Definitely stop by his blog, www.danoah.com. You won't be disappointed. PS: THey are not all about adoption.

Okay, here comes another "Single Dad Ranting" post. You may laugh, but hopefully only because you see the idiocy and carelessness of some people, bless their hearts. Please, though, this is something that I'm very serious about and I hope you'll listen in.

What do you notice about this photo?


Hopefully you just see a father and son. Maybe you see a beautiful bond. Maybe you see love. Maybe you see two awesome human beings. Hopefully you don't see a damn price tag hanging from Noah's ear or a child who will never know true happiness.


You see, today when I was at the store with Noah, somebody had the nerve to ask me, right in front of Noah, "how much did he cost?" And this was the second time somebody has asked that absolutely ridiculous and insensitive question to me; I know his mom has heard it too.

You may have noticed that Noah is of a slightly different race than his old man. He's a quarter Panamanian, quarter Jamaican, and half Caucasian. Noah is my son. Noah was adopted. Trust me, I couldn't pass on genetics to a kid this beautiful.

And since he was placed with us, his parents, I have learned just how insensitive the world can be to kids who have been placed through adoption. People don't realize how fragile the minds of young children are. People don't realize that wording things certain ways can hurt a child, and badly. And with that, I present to you the following list, all taken from personal experiences in the past three years:

Single Dad Laughing's Guide to Adoption Etiquette.
  1. Never, ever, ever, ask how much a child costs. This includes the phrase, "how much did you pay for him?" First of all, it's none of your business. Second of all, if you're interested in adoption, research it through the appropriate channels. Speak with an adoption agency. Adoptive parents don't purchase children. They simply pay legal fees and agency fees. Just like biological parents pay hospital and doctor bills. Don't turn the child into nothing more than a commodity.
  2. Never ask if a celebrity inspired the adoption. Believe it or not, Tom Cruise, Connie Chung, and Angelina Jolie did not convince me one way or the other in the biggest decision of my life. Are you serious?
  3. Never ask "where is his real dad?" Forget the fact that it will hurt my feelings. How do you think it will affect my son's feelings to feel like I'm not a real dad to him? Adoptive parents are real parents. The term you're looking for is "birth mother" or "birth father".
  4. Don't say things like, "as soon as you adopt you're going to get pregnant" when you find out somebody is adopting. First of all, there are usually many, many years of pain and financial burden strapped to infertility, treatments, and heartache. Do you really think that what you're saying will help them? Secondly, while it is funny when it happens, it's rare.
  5. Never say, "why did she give him away?" Do I really need to explain why this one would hurt a child? The proper term is "placed". A birth mother and birth father place their child for adoption. And again, it's personal and none of your business, so don't ask if you aren't my BFF.
  6. Don't say, "it's like he's your real son". This is similar to number three, but worthy of mentioning. He is my real son, damn it.
  7. Don't say, "do you love him as if he was your own?" Ummm... probably more than you love your little terror, that's for sure. And again... he is my own, damn it.
  8. Never say things like, "you're so wonderful to adopt a child". I am a parent. Just like anybody else with kids.
  9. Don't start spewing your horrible adoption stories. "This one time, my friend's sister's aunt's dog's previous owner's niece adopted a baby and the real dad came back and they took the baby away after they had him for two years." First of all, it probably isn't true. Second of all, how would you feel if I told you about all the ways you could lose your child. Adoption is permanent. And in the extremely rare circumstances that something like that happens, it's not something you should spread because the hurt that exists for all the parties involved must be immeasurable.
  10. Don't say things like, "is it hard for him to be adopted?" Well, it wasn't, until you asked me that right in front of him you freaking idiot.
  11. I don't want to hear about your second cousin who was on a waiting list for twelve years and never got a baby. Granted, this one was much more annoying when we were going through the adoption process. Nobody wants to know that some people never get chosen. Show some kindness. Even to ugly people.
That's all I can think of right now, but I know there are more. Just be sensitive. Don't put your nose where it doesn't belong. Respect my father-son relationship for what it is and don't lessen it. Don't talk about my son like he's not even there or too little to understand. Or do, if you're okay with a swift kick to the face.

I understand that I'm not being super politically correct here, but I'm a little bit pissed off about what happened today. And understandably, so is the old woman I sent away in an ambulance. I know she meant no harm.

Dan Pearce, Single Adoptive Dad Laughing

PS, please post this one on Facebook and Twitter. Most people have good intentions but really say some horrible things without ever knowing it. This is one bit of education that
needs to be passed on.

Tomorrow, I'll share with you the non-private details of how Noah came into our lives. It's a beautiful story.
Click here to read it. "Noah. A beautiful tale of adoption."

Thursday, February 17, 2011

Adoption....

I know for Emory and I there were times throughout each of our 4 adoptions, that we truly questioned whether or not we could handle anymore. Adoption is not easy. It is an emotional journey. There is heartache, there is hurt, frustration and so much more.....but, the JOY at the end of the road is so much greater than the heartache. Ask any person that has adopted, even the person that got their baby on the first birth mom presentation, ask them if they endured heartache or frustration. They did. Of course, there are varying degrees, and it all depends on how long you have been on the journey and the circumstances you have walked through, but as adoptive parents, we have all suffered an emotional roller coaster.


The Lord never promised an easy path. Instead, He promised that He would be with us and that it would all be worth it in the end.


We were commanded to take care of the orphans in James 1:27, "Religion that is pure and undefiled before God, the Father, is this: to visit orphans and widows in their affliction, and to keep oneself unstained from the world." He commanded us to take care of the widows and the orphans, He didn't say take care of them and I will make it easy, or that we would understand each path that He would take us down, He just said to do it.


I love my job as an adoption consultant. I love it! It brings me such joy to watch the Lord build families through adoption, it brings a smile to my face to see these orphans rescued, to see Christian families being obedient. I love it! However, it doesn't come without a price either....luckily, there are many more happy days, than sad ones....but, the sad ones are hard. My clients are my friends, they are brothers and sisters in Christ, I love each of them dearly and it is difficult to watch them go through the journey that is adoption. I know in the end, they will have a baby, I know that once they hold their baby, it will have all been worth it, but it doesn't make it any easier to watch them hurting NOW.


The Lord tells us in Galatians 6:2, "Carry each other's burdens, and in this way you will fulfill the law of Christ." We have to support each other through the adoption journey, we have to pray for one another, really lift each other up to the Lord.


We have to believe Jeremiah 29:11 each step of the way, "For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future."


We have to trust that if the Lord commanded us to do something, that He will be with us every step of the way, we have to believe Joshua 1:9, "Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the LORD your God will be with you wherever you go."


No, the adoption journey is not an easy one. It is not easy to watch your friends and family go through the heartache, frustration and disappointments that they will most likely encounter. However, I know for each one of my clients that has experienced heartache along the way, knows that the Lord is directing their steps, knows they were commanded to take this journey, and knows that they cannot turn back, although sometimes that is all we want to do.


We know that Proverbs 24:12 says, "Once our eyes are opened, we can't pretend we don't know what to do. God, who weighs our hearts and keeps our souls, knows that we know, and holds us responsible to act."


I say all this to say, I know the road to your child is not an easy one, but you can rest assured that I am on my knees daily for each of my clients, my friends, lifting you up to the One that commanded you to rescue the orphans, and to the One that directs your steps! Praise the Lord that we don't have to walk the adoption road alone, Praise the Lord that He is there every step of the way!


He is good!!!


Now to Him Who is able to do immeasurably more than all we ask or imagine...to Him be the glory." Eph. 3:20

Wednesday, February 16, 2011

My little lion....

Pictures, Pictures and more pictures....




Collier loving his floor mat....or at the hospital....on the bed mat!!
Emmy...sound asleep!
This hat makes her look jamaican!
Sleeping Beauty!
Sweet siblings!
Respiratory therapy is no fun....but love my baby brother sleeping next to me!
Wearing Uncle Parker's OR cap!
Soooo cute!
Always stylin'

Emmy Update:

I feel like I am posting a lot of these lately, but there is a lot going on with Miss Priss lately!! I spoke with her hematologist today, and they told me that all of her viral panels, including her parvo titers were negative. That is great news!! Although, it doesn't explain why she keeps running these fevers, and it also lends itself more to the fact that there is truly a secondary disease involved and maybe it is causing her brain to make her internal thermometer malfunction! Which is very scary to me! But, maybe it doesn't mean that at all, I mean it's not like they can test for every viral disease out there, right!! Sorry for the inner dialogue here!! I am convincing myself of a lot of things these days! Waiting on such important information is very difficult! Pray for me...pray that I can be patient and not drive myself crazy as I wait!!

Here is a cute pic of me with Collier and Emmy earlier this afternoon!! This weather has been perfect for the past few days and we have enjoyed playing outside!


People can be so malicious....



Who would poison something that stands for so much more than a football tradition?

AUBURN, Alabama – Auburn University today confirmed that an herbicide commonly used to kill trees was deliberately applied in lethal amounts to the soil around the Toomer’s Corner live oaks on campus, and there is little chance to save the trees.

The trees are the traditional gathering place following a major sports victory. Auburn Tigers fans festoon the trees with toilet paper as a jubilant sign of Auburn pride. Most recently, of course,it was the scene of celebration for Auburn's victory over the Oregon Ducks in the BCS National Championship game on Jan. 10.

The city of Auburn Police Division is investigating the situation, and the application of this herbicide, known as Spike 80DF, or tebuthiuron, is also governed by state agricultural laws and the Environmental Protection Agency.

The university does not use Spike herbicide, officials said. Officials did say there is no reason to suspect any human danger from the herbicide, which manufacturer Dow Chemical says should be applied with proper clothing protection; a typical use of the herbicide is to kill trees along fence lines.

The university learned that a caller to The Paul Finebaum Show, a nationally syndicated radio show based in Birmingham, on Jan. 27, claimed he had applied the herbicide. As a precaution, soil samples were taken the next day and sent to the Alabama State Pesticide Residue Laboratory on campus for analysis. Due to a small fire that occurred in the Alabama lab in December, the tests were sent to the lab at Mississippi State University in Starkville, Miss., to expedite results.

“We are assessing the extent of the damage and proceeding as if we have a chance to save the trees,” said Gary Keever, an Auburn University professor of horticulture and a member of Auburn’s Tree Preservation Committee. “We are also focused on protecting the other trees and shrubs in Samford Park. At this level the impact could be much greater than just the oaks on the corner, as Spike moves through the soil to a wide area.”Officials said in a news release that the lowest amount of the poison detected was 0.78 parts per million, described by horticulture experts as a “very lethal dose.” The highest amount detected was 51 parts per million, or 65 times the lowest dose. Experts believe a normal application by itself would have been enough to kill the trees, which are estimated to be more than 130 years old.

Additional tests are being completed to determine the movement and extent of the area affected, Keever said.

The removal process involves digging trenches and applying activated charcoal to absorb the herbicide from the soil and block its progress. A representative from Dow Chemical, which manufactures the herbicide, is advising the university on removal procedures, and expert horticulturalists are also being consulted.

“We will take every step we can to save the Toomer’s oaks, which have been the home of countless celebrations and a symbol of the Auburn spirit for generations of Auburn students, fans, alumni and the community,” said University President Jay Gogue.

Gogue asked members of the Auburn Family to “continue to be ‘All In’ in upholding its reputation for class” and not allow anger to be expressed inappropriately or undeservedly.

“It is understandable to feel outrage in reaction to a malicious act of vandalism,” Gogue said. “However, we should live up to the example we set in becoming national champions and the beliefs expressed in our Auburn Creed. Individuals act alone, not on behalf of anyone or any place, and all universities are vulnerable to and condemn such reprehensible acts.”

Sunday, February 13, 2011

My sweet, sweet girl!

Good News!!!

We are home!! Praise the Lord. Emmy's labs showed improvement this morning, so they decided to send us home before she caught something in the hospital! A lot of stomach virus' going around! Thankful for the improvements and thankful to be home.

We will going back and forth between Scottish Rite and Emory the next few weeks for tests, so please continue to pray for Emmy. Pray for her strength through this all, pray for her little spirit!! I know this is all wearing her out, and it breaks my heart!

I will let you all know more, as soon as we start getting some answers from all of the tests we are running!! Thanks for the continues support, emails, dinners, texts, etc! Appreciate everything so much!!

Saturday, February 12, 2011

Perspective...


Yesterday, was Emmy's MRI!! I knew what they were looking for and I knew if it came back abnormal that could be bad, really bad. I was so worried. Her symptoms of ataxia suggested there was a lot of good reasons to perform the MRI, and that it also may come back with abnormal findings. I was worried. So, in order to kill time, approximately 30-45 minutes I decided to go buy her a new stuffed animal from the gift shop. I never actually made it there to make a purchase. While passing through the lobby, I ran into a friend from church, one of the pastors. He was coming to visit Emmy and one other child. He and I chatted for a second, and then I walked him to the other patients room, it happened to be 10 doors down from Emmy's room. We are on Aflac, this floor is strictly for children with cancer and/or blood disorders. This is a scary floor, a lot of these children have cancer and are very, very sick. Since we have been here, 2 children have been moved to PICU, with the nurses fearing that they would not return. So, as I walked my friend to this room, I thought about the fact that this child probably has cancer. I had not intended to go in with him, but as we approached his room, he suggested that I come in and meet the family and pray with them. So, in I went!

"D" is a 16 year old boy with lymphoma. He was diagnosed in July, and has only been home for a total of 6 weeks since his diagnosis. "D" has been through a lot in the past 7 months. He has had 2 very short periods where they thought he was cancer free. He has had all the radiation that he can have. They have done all that they can do. There is nothing else that a traditional medical program can offer. They are now looking for radical alternative treatment programs, they are trying to buy their son time. This is what I walked into while waiting on my child's MRI!

We prayed with this family and then we left. I walked my friend back into the lobby, and then I headed back to wait on Emmy. I thanked the Lord for perspective in that moment. I thanked Him for Emmy, and that although she is sick a lot, she is not literally fighting for her life. I thanked Him for this new perspective.

2 hours later, I was told that Emmy's MRI was abnormal, I was told that a neurologist would be coming to evaluate Emmy and to tell me what the findings were. I was immediately panicked. Anytime, your specialist has to call another specialist, it should be a warning that the situation is less than desirable.

About an hour or so after that (it felt like a lifetime), the neurologist came in and examined Emmy. She asked questions for about 15 minutes and examined her all before ever telling me what the heck was going on. I was going crazy!

Finally, she asked me the same question 2-3 times, and I repeated the same answer that I had the last 2-3 times, and said I may be getting ahead of myself, but what is on the MRI that you would feel it necessary to ask me that question over and over again!

She then realized that she was the first person to come in, and that nobody had explained the results to me. She just figured that Emmy's hem/onc team had discussed it with me already. SO, she immediately jumps into the discussion of Emmy's MRI. She used big medical words and honestly, I didn't understand a lot of what she was telling me, I heard the words, but couldn't really understand what they meant for a diagnosis. I didn't like the words that I recognized at all! They were kind of scary words.

She then brought in a computer and showed me a normal brain scan, and then showed me Emmy's brain scan. She pointed out all of the abnormalities, and proceeded to tell me that she may have a secondary disease, but they aren't sure what.....which means more testing.

So, she named a few diseases and they are scary. I am praying that they are wrong, I am praying that the findings don't mean anything, although I have been told by several doctors that they most likely mean something! Possibly a very scary something.

24 hours has passed since I met with the neurologist...I have googled some of these diseases, I have read about their complications and treatments, and I have scared myself to death. So, I am choosing to do no more googling until we have a diagnosis. However, as I read through some of these websites, I was reminded of "D". I was reminded that my child acts and seems fine. She is developmentally on target, she is smart and she looks fine...My child is not laying in bed with days or weeks left. We have been here 1 week, not 7 months. Other than the fact that I know that all of our days are numbered, I am not looking for alternate methods to prolong my childs life by a few weeks. Emmy is a happy little girl. It is all about perspective. I believe the Lord was preparing me for the news of an abnormal MRI, I believe He wanted me to have perspective when I googled these scary names. I believe HE wanted me to remember that HE is in control.

NOTHING SURPRISES HIM. HE KNEW ALL OF THIS BEFORE THE BEGINNING OF TIME. PRAISE THE LORD THAT HE IS THE SAME YESTERDAY. TODAY AND TOMORROW.

Trusting in Him. Pray for Emmy. Pray for Emory and I. Pray for wisdom for the doctors and nurses. Pray that these tests will come back quickly and provide answers. Pray that they would determine the cause of the abnormal findings quickly! Pray that I will keep perspective throughout this journey.....

....We don't know a lot yet, so we will let everyone know the findings when we have more information! The last thing I need is other people googling the findings and telling me what they think it could mean, I have already done that myself! HA!! Right now we just want your prayers! Thanks!..........


Friday, February 11, 2011

Faithful Mommy....

My mom wrote the cutest blogs about Collier's visit to the hospital! You must go visit and read them! While you are there make sure to leave her a comment, bloggers love nothing more than to know who is reading their blog, and what you thought of it!! If you have a moment, you should read some of her older posts, she's a pretty good little writer!!


Hope you enjoy!!

Thursday, February 10, 2011

24 hours ago...


A lot can change in 24 hours. The last post I wrote was about hopefully getting to head home after a 5 day admission with Collier!! Well, he was discharged! Praise the Lord for that! So, glad that he is finally off all those machines! Bless his heart, the EEG probes broke down his skin, so now he has open wounds all over his little head. Please pray that they will heal fast! He started a new medication today, it is called phenobarbital. It is a sedative/anti-epileptic. I really didn't want him to have to be on this medication, but for now, they believe that it is necessary! UGH!! Please pray for him and for us as we all adjust. This medicine will make him sedate, so really sleepy, but also can make him very irritable!! Pray that it will not make him irritable! As far as extra sleepy, he never sleeps, so that might be a good thing for a week or two! :) Please continue to lift him up in prayer as we deal with these seizures!!


Collier sleeping soundly


Well....back to that "a lot can change in 24 hours" statement....Emmy came for a quick visit with daddy and the other kiddos last night! Upon her arrival, I felt like she was a little warm, but not burning up or anything...she played, ran around the hospital room and the whole 1st floor, visiting her fan club of nurses and techs!! Right as they were hopping up to leave, I picked her up to hug her and she was on fire. A thermometer in the toosh later, her temp was 103. UGH!! We called AFLAC, they advised a quick trip to the ER downstairs, after pokes, IV's, fluids, antibiotics, scans, and labs they let us go back to our room and did not admit Emmy! That joy was short-lived!
Thursday morning, Emmy woke up with 102 temp, not a huge deal, considering her 103 temp just 12 hours before, but this time she was acting different. Within 45 minutes of waking up, we noticed that Emmy did not want to be put down to walk, we finally got her to put her feet to the ground and realized she was very dizzy, she could not even take a step without falling to the ground, when I picked her up she was on FIRE!!! Her temp was over 105. Fabulous! I called AFLAC, they were very concerned about the loss of balance, and her unwillingness to even try to walk around....they ordered an immediate CT scan! I ran downstairs with her, and my dad sat with Collier in his room. The CT scan was normal, but they admitted her. Fever has stayed above 102 all day, mostly above 104...she still is unable to walk due to the dizziness, and is even showing mild head tremors and is unbalanced when trying to sit up! MRI is in the morning!! Sickle Cell patients are prone to strokes, so they are looking for evidence of a mild stroke or some other complication in the brain, such as a clot. Please pray that her scans are normal, and that we find the source of her instability! She is also having some breathing difficulties as I type this. Respiratory Therapy was just in giving her a breathing treatment, and was just called back for a 2nd within an hour. Her lungs are very course, and she has a bit of a cough!! Please keep her in your prayers! Her platelets are low, as is her retic count (reticulocytes=red blood cell production), hemoglobin was okay this morning, but I will be anxious to see what it is after 24 hours of fever!! Thanks for the prayers! I promise to keep you updated!!!

Sweet Emmy