Our Second Home

Well, here we are again, at our second home....Scottish Rite. Emmy is sick AGAIN!! Actually, she isn't sick, she is just running temps of 105 degrees. She has no symptoms, not a one. We have no idea what is going on, but our team of doctors is determined to figure it out. Praise the Lord for that!! We have been here everyday since Tuesday, and admitted on Thursday. She has consistently run fever since Monday afternoon, as the week has progressed her food and liquid intake has slowed and her energy levels have dropped. She is worn out!! Not that I can blame her! Can you? She has been poked in literally every vein in her hands, arms, feet and legs. She has been x-rayed, CT scanned, MRI'd, etc....She is flat tired of this. Me too!! We are ready for answers, unfortunately the current bout of tests they are running are tests that take a while to come back, so we wait. UGH, I hate to wait.

We are meeting with the geneticist, infectious disease and neuro teams today....hopefully, they can at least provide some insight into what they think is the problem. Being that her MRI is so abnormal, there is a small chance that there is damage to the hypothalamus causing her body to be unable to regulate her temps, we will see!

Pray for us as we wait! Pray for Emmy. They will be placing a port in her chest in the very near future, possibly even on Monday if her labs can stabilize. Pray that they do, pray that they can place the port with no complications. Thank you for the prayers!! We appreciate them so much!!! Here are a couple of pics of Miss Emmy!!

Snoozing with Collier

Painting a sun catcher

Meeting Rep. John Lewis

Playing with my new toy!