A lot can change in 24 hours. The last post I wrote was about hopefully getting to head home after a 5 day admission with Collier!! Well, he was discharged! Praise the Lord for that! So, glad that he is finally off all those machines! Bless his heart, the EEG probes broke down his skin, so now he has open wounds all over his little head. Please pray that they will heal fast! He started a new medication today, it is called phenobarbital. It is a sedative/anti-epileptic. I really didn't want him to have to be on this medication, but for now, they believe that it is necessary! UGH!! Please pray for him and for us as we all adjust. This medicine will make him sedate, so really sleepy, but also can make him very irritable!! Pray that it will not make him irritable! As far as extra sleepy, he never sleeps, so that might be a good thing for a week or two! :) Please continue to lift him up in prayer as we deal with these seizures!!
Collier sleeping soundly
Well....back to that "a lot can change in 24 hours" statement....Emmy came for a quick visit with daddy and the other kiddos last night! Upon her arrival, I felt like she was a little warm, but not burning up or anything...she played, ran around the hospital room and the whole 1st floor, visiting her fan club of nurses and techs!! Right as they were hopping up to leave, I picked her up to hug her and she was on fire. A thermometer in the toosh later, her temp was 103. UGH!! We called AFLAC, they advised a quick trip to the ER downstairs, after pokes, IV's, fluids, antibiotics, scans, and labs they let us go back to our room and did not admit Emmy! That joy was short-lived!
Thursday morning, Emmy woke up with 102 temp, not a huge deal, considering her 103 temp just 12 hours before, but this time she was acting different. Within 45 minutes of waking up, we noticed that Emmy did not want to be put down to walk, we finally got her to put her feet to the ground and realized she was very dizzy, she could not even take a step without falling to the ground, when I picked her up she was on FIRE!!! Her temp was over 105. Fabulous! I called AFLAC, they were very concerned about the loss of balance, and her unwillingness to even try to walk around....they ordered an immediate CT scan! I ran downstairs with her, and my dad sat with Collier in his room. The CT scan was normal, but they admitted her. Fever has stayed above 102 all day, mostly above 104...she still is unable to walk due to the dizziness, and is even showing mild head tremors and is unbalanced when trying to sit up! MRI is in the morning!! Sickle Cell patients are prone to strokes, so they are looking for evidence of a mild stroke or some other complication in the brain, such as a clot. Please pray that her scans are normal, and that we find the source of her instability! She is also having some breathing difficulties as I type this. Respiratory Therapy was just in giving her a breathing treatment, and was just called back for a 2nd within an hour. Her lungs are very course, and she has a bit of a cough!! Please keep her in your prayers! Her platelets are low, as is her retic count (reticulocytes=red blood cell production), hemoglobin was okay this morning, but I will be anxious to see what it is after 24 hours of fever!! Thanks for the prayers! I promise to keep you updated!!!
Sweet Emmy
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1 comment:
Can't tell you how my heart aches for your family hearing of these struggles with your littlest people's health. We are praying for the Lotts and asking for healing and wellness for all. I can only imagine how this is for you as the momma of all these precious ones. Just seeing that pic of Emmy next to your account of the past day brings tears to my eyes. Her and John Mark are so close in age and it almost looks like my baby lying there....Praying for you girl, and your precious ones.
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